Attitudes, perceptions and experiences of Parkinson’s disease patients undergoing structured activity programmes and how this may influence treatment ideals in manual therapy.
Item
- Title
- Attitudes, perceptions and experiences of Parkinson’s disease patients undergoing structured activity programmes and how this may influence treatment ideals in manual therapy.
- Author(s)
- Stark, G
- Abstract
- Background: Parkinson’s disease (PD) is an inevitably progressive neurological disease, for which the prognosis and outcome cannot be generalised. NHS costs, the increasing importance of non-motor symptoms and the adverse effects on quality of life of PD patients, and that of their family/carers, has generated strong recommendation for intervention guidelines and has accelerated research into the benefits of exercise and manual therapy. Numerical values are explicitly used to illustrate the significance of the above, with qualitative data often ignored. Objective: Ascertain the significance of the principal alternative hypothesis – ‘There is an association between the characteristics of Parkinson’s disease patients and their attitudes, perceptions and experiences of Parkinson’s focused activities’ – using patient reported outcome measures from a bespoke questionnaire evaluating subjective experiences. Design: Cross-sectional questionnaire. Methods: The bespoke questionnaire was distributed to PD sufferers currently living in Kent or Suffolk and taking part in a Parkinson’s focused activity via gatekeeper’s (the named contact). Chi-squared/Fisher Exact tests were carried out to demonstrate the significance, or otherwise, of twenty-eight sub-hypotheses. Word clouds were produced to reflect responses from open-ended questions. Results: Twenty-five responses were collated. The number of comorbidities suffered following diagnosis and level of ambulation (p = 0.024) and age at the time of diagnosis (p = 0.009); actual time of the activity and preferred time of activity (p = <0.001); and recommendation and the perceived importance of the activity (p = 0.020) showed significance. Word clouds represent participant experiences. Discussion: The present study, despite the small sample size, found similar associations with published literature. Comorbidities, cognition and recommendation significantly impacted attitudes, perceptions and experiences. A discrepancy in the knowledge of adjunctive management modalities between sufferers and lack of communication from their health care professionals remains high, regardless of the vast literature and reported positive impact on symptoms. Conclusion: Significant similarities between the present study and wider published literature, the importance of PD focused activities and the likelihood of a type 2 error, in at least some of the present findings, demonstrates the need for further investigation.
- presented at
- European School of Osteopathy
- Date Accepted
- 2020
- Date Submitted
- 28.10.2020 18:08:19
- Type
- osteo_thesis
- Language
- English
- Submitted by:
- 62
- Pub-Identifier
- 16694
- Inst-Identifier
- 1229
- Keywords
- Activities, Experiences, Parkinson's Disease, Questionnaire
- Recommended
- 0
- Item sets
- Thesis
Stark, G, “Attitudes, perceptions and experiences of Parkinson’s disease patients undergoing structured activity programmes and how this may influence treatment ideals in manual therapy.”, Osteopathic Research Web, accessed May 19, 2024, https://www.osteopathic-research.com/s/orw/item/161